We all live with an acceptable amount of pain since we have no choice.

What do you rate your every day pain?

If someone swapped bodies with you, what would THEY rate that pain?

  • popemichael@lemmy.worldOP
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    1 year ago

    There’s a ‘community-driven nonprofit’ that all of us put together and run called The FD/MAS Alliance

    We all raise any money that we can and funnel it into genetic research to find a cure for this monstrously life altering condition.

    Being able to pool our money like that and apply for grants allows us to hire doctors and labs to look for a cure. Fingers crossed with CRiSPR!

    • SpezCanLigmaBalls@lemmy.worldM
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      1 year ago

      Good to know! That’s for sharing

      Crispr is some insane engineering and will and is changing the medical field everyday. I really hope they find something for you!